West Syndrome Foundation

The “West Syndrome Foundation” was set up in January 2004 by Miguel and Nuria, Dani's parents, who were born with the disease five years earlier.

It was precisely the fact that they felt like true "Martians" and had given so many "sticks" in their fight to improve Dani's life, which led them to create the Foundation, with the intention of sharing experiences with other people who were going through the same thing.

The three main pillars and objectives of the Foundation are: to provide help and advice to families; to promote scientific research into the causes and treatment of "West Syndrome"; and to promote the dissemination of this disease, in order to make society aware of its existence.

Meet us at www.sindromedewest.org